Patient knowledge and information-seeking about personalized cancer therapy.

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dc.contributor.authorRogith, Deevakar
dc.contributor.authorYusuf, Rafeek A
dc.contributor.authorHovick, Shelley R
dc.contributor.authorFellman, Bryan M
dc.contributor.authorPeterson, Susan K
dc.contributor.authorBurton-Chase, Allison M
dc.contributor.authorLi, Yisheng
dc.contributor.authorBernstam, Elmer V
dc.contributor.authorMeric-Bernstam, Funda
dc.contributor.orcidhttps://orcid.org/0000-0002-5141-6095
dc.date.accessioned2023-11-07T19:40:41Z
dc.date.available2023-11-07T19:40:41Z
dc.date.issued2016-04
dc.descriptionClick on the Resource Link to access the article (may not be free).
dc.description.abstractBackground: Understanding patients' knowledge and prior information-seeking regarding personalized cancer therapy (PCT) may inform future patient information systems, consent for molecular testing and PCT protocols. We evaluated breast cancer patients' knowledge and information-seeking behaviors regarding PCT. Methods: Newly registered female breast cancer patients (n=100) at a comprehensive cancer center completed a self-administered questionnaire prior to their first clinic visit. Results: Knowledge regarding cancer genetics and PCT was moderate (mean 8.7±3.8 questions correct out of 16). A minority of patients (27%) indicated that they had sought information regarding PCT. Higher education (p=0.009) and income levels (p=0.04) were associated with higher knowledge scores and with seeking PCT information (p=0.04). Knowledge was not associated with willingness to participate in PCT research. Conclusion: Educational background and financial status impact patient knowledge as well as information-seeking behavior. For most patients, clinicians are likely to be patients' initial source of information about PCT. Understanding patients' knowledge deficits at presentation may help inform patient education efforts.
dc.description.grantGrant Funded
dc.description.sponsorshipP30 CA016672/CA/NCI NIH HHS/United States
dc.description.sponsorshipCA016672/CA/NCI NIH HHS/United States
dc.description.sponsorshipU01 CA180964/CA/NCI NIH HHS/United States
dc.description.sponsorshipUL1 TR000371/TR/NCATS NIH HHS/United States
dc.description.sponsorship1U01 CA180964/CA/NCI NIH HHS/United States
dc.description.urihttps://doi.org/10.1016/j.ijmedinf.2016.01.005
dc.description.urihttp://www.ncbi.nlm.nih.gov/pmc/articles/pmc4789765/
dc.identifier.citationRogith D, Yusuf RA, Hovick SR, Fellman BM, Peterson SK, Burton-Chase AM, Li Y, Bernstam EV, Meric-Bernstam F. Patient knowledge and information-seeking about personalized cancer therapy. Int J Med Inform. 2016 Apr;88:52-7. doi: 10.1016/j.ijmedinf.2016.01.005. Epub 2016 Jan 18. PMID: 26878762; PMCID: PMC4789765.
dc.identifier.issn1386-5056
dc.identifier.other26878762
dc.identifier.urihttps://hdl.handle.net/20.500.14303/305
dc.language.isoen
dc.publisherElsevier Science
dc.relation.ispartofInternational Journal of Medical Informatics
dc.rightsThis Item is protected by copyright and/or related rights. You are free to use this Item in any way that is permitted by the copyright and related rights legislation that applies to your use. For other uses you need to obtain permission from the rights-holder(s). http://rightsstatements.org/vocab/InC/1.0/
dc.subjectInformation-seeking behavior
dc.subjectMolecular testing
dc.subjectPatient attitudes
dc.subjectPatient knowledge
dc.subjectPersonalized cancer therapy
dc.titlePatient knowledge and information-seeking about personalized cancer therapy.
dc.typeArticle
local.departmentprogramDepartment of Allied Health Sciences
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